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Nicole Cornell |
I am Nicole Cornell's mother Patricia. Nicole has had many
things that she has fought with sense she was a child. I
have copied things off the web to explain what she is
diagnosed with better than I am able to explain.
When she was three she had to have eye muscle surgery
for having crossed eyes. Then
when she was 10 she had to have an Ingenal hernia repaired.
When she was 11 she had to have her tonsils and adenoids out
that is when they found out that she has an autoimmune
disease called
Hashimoto's thyroiditis which is an autoimmune disorder, in
which the body attacks thyroid tissue. The tissue eventually
dies and stops producing hormones. Hashimoto's causes cold
sensitivity and muscle aches. Nicole spends nearly every day
with pains, Due to her thyroid disease not being controlled
well with the medications. She will be on two different
hormone replacements for the thyroid disease for the rest of
her life.
Sense Nicole was 10 she has been in and out of the ER and
hospital for chest pain and shortness of breath. Finally
when she was almost twenty and kept passing out they found a
hole in her heart the size of a quarter .
Called an ASD, an atrial septal defect (ASD) which is a
hole in the wall between the left and right chambers. As a
result of the hospital not finding this early on the right
side of her heart became enlarged. When a child is born
with an ASD it is a form of CHD
Which present at birth and can affect the structure of a
baby’s heart and the way it works. They can affect how blood
flows through the heart and out to the rest of the body. CHD
can vary from mild (such as a small hole in the heart) to
severe (such as missing or poorly formed parts of the
heart).
About 1 in 4 babies born with a heart defect has a critical
CHD (also known as critical congenital heart disease).1
Babies with a critical CHD need surgery or other procedures
in the first year of life. Unfortunately for Nicole hers was
not discovered till early adult hood thus causing her to
have trouble when trying to play sport through high school
due to shortness of breath while doing activity.
After the the hole in her heart was closed she started
having very fast or racing heartbeats which are called
Supraventricular .tachycardia (SVT) causes episodes of a
fast heartbeat. Thumping heart sensations (palpitations) and
other symptoms may occur during each episode. Regular
medication can prevent episodes of SVT. Another treatment
option in some cases is to destroy a tiny part of the heart
that triggers the SVT. The cause of Nicole's SVT is because
she has a sinus node defect. As a result she was put on two
different heart medication which she will probably be on for
the rest of her life to keep her heart rate low enough for
her to lead a normal life.
Nicole also has chronic hypokalemia, Hypokalemia
occurs when the blood’s potassium levels are too low. A
normal level of potassium is 3.6-5.2 millimoles per liter.
Levels below 3.6 are considered low. Anything below 2.5
millimoles per liter is very low. Nicole has had a potassium
as low as 1.9 this put her in the hospital with chest pain
for several days. They are not sure why her potassium keeps
dropping but they are looking into it. She has probably been
in the hospital more then 10 times this year for this alone.
They are leaning towards kidneys problems.
Early this fall Nicole at work and collapsed in pain. She
was suffering for the pain of hydronephrosis which was being
caused from a kidney stone that was obstructed her left
utter. Kidney stones put her in the hospital for a little
over a week. She ended up passing four stones in that time.
The last trip to the hospital was for a complex migraine .
This migraine caused her right arm and both legs to become
unusable for several days. Nicole had to work with physical
therapy to regain her strength to walk and climb stairs.
After a week she was sent home still had the headache . The
complex migraines that she gets are worse than a headache
most people have experienced they are very debilitating. And
can be hard to treat.
I'm not sure if I have everything listed that she has gone
through and still is going through . The biggest is the
heart defect and her low potassium which will be a life long
problem for her and causes frequent hospitalization for her.
She was an EMT with the
Milford Emergency Squad, and now works for a paid EMT
service. So, while she is fighting for her own life at
times; she is saving others.
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Do you have extra
cans and bottles? You can donate them to the PBJ. Drop them off at
the Redemption Center at 459 Chestnut Street in Oneonta.
607-433-9750. Tell them that they are for the PBJ Kids!

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