Crohn's
disease is where the immune system attacks
the gastrointestinal (GI) tract. Currently
there is no cure. The disease is managed by
medicines. Henry became severely ill at 11
years old. He was diagnosed with Crohn’s
disease at Albany Medical. As Henry’s case
was complex Albany worked in conjunction
with North Shore Jewish Children's Hospital
for treatment plans. Medicines are limited
and with little success Henry's care was
transferred to Boston Children’s Hospital.
We travel every four months to Boston. He
has a team of GI, hematology, surgical and
immunology doctors. He is on weekly
medications and receives iron infusions
every 6 months. Most recently he had a
surgical procedure in hopes that, in
combination with his medicines, he can
achieve remission.